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Chronic Illness@lemmy.worldEnglish · 2 months ago

"Oh you're so lucky, I wish I could spend so much time in bed"

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"Oh you're so lucky, I wish I could spend so much time in bed"

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FundMECFSResearch@lemmy.blahaj.zoneM to

Chronic Illness@lemmy.worldEnglish · 2 months ago

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2 months ago
Just got diagnosed with lupus and now I have to explain to people that I have to take extreme precautions when out and about because the sun can fuck me up super bad.

Chronic Illness@lemmy.world

chronicillness@lemmy.world

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

Visibility: Public

This community can be federated to other instances and be posted/commented in by their users.

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44 users / week
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3.25K users / 6 months
4 local subscribers
244 subscribers
57 Posts
691 Comments
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