• LiveLM
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    1 month ago

    So I looked up the account on the screenshot and fell into a huge rabbit hole.
    The TL;DR is that the poster has a rare syndrome that makes it so his body simply doesn’t have energy to perform most tasks, and it progressed to a point where merely interacting with other people causes his brain to use too much “energy” and makes him crash.

    My TL;DR is a gross oversimplification of his story and doesn’t do it any justice. When you have the time, please read what he has to say, it’s eye opening: My Story by Whitney Dafoe

    • FundMECFSResearch@lemmy.blahaj.zoneOP
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      1 month ago

      Thanks for sharing. I have ME/CFS too.

      It’s not even that rare over 2 million people in the US have it, just quite a marginalised illness, mostly because it majoritarily affects women and was therefore blamed on “hysteria” till the 80s. A lot of the medical system still has prejudicicial views towards it.

      A decent chunk of the more severe Long COVID cases fit ME diagnosis criteria, which makes sense, because most ME cases have historically been caused by viral infections.